For Patients With CFS, Going To The Bathroom Is Similar To Running A Marathon.
By: Ellen de Visser. Patient and doctor Mark Vink about Chronic Fatigue Syndrome. Having so little energy that you can only leave your bed twice a day: that’s what CFS can be like. Researchers...
View ArticleWhat To Remember On Days Your Illness Makes You Feel Like Giving Up
By Sarah Waisler in The Mighty. Dear You, You are absolutely right. This does suck, it’s not fair, you do deserve better. This is not what you had planned and you would have done more if you had...
View ArticleCould This Documentary Change The Way We Perceive Chronic Fatigue Syndrome ?
By Guy Kelly in The Telegraph. It has been more than 60 years since a bewildering epidemic swept through the Royal Free Hospital in north London, rendering almost 300 members of staff...
View Article17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’
By Erin Migdol in The Mighty. Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone...
View ArticleTo Those Who Give Me Dirty Looks For Using A Disability Parking Space
By Brittney Lindstrom in The Mighty. I don’t know why, but whenever some people see me get out of the car in a disability parking spot, I get some dirty looks. But why? Do you not believe I have a...
View Article20 Things About Being Sick At Twenty
From The Hospital Princess Blog by Chey. You meander your way into the doctor’s office. It appears there is a long wait. The doctor is running behind, as always, and his staff is in no hurry to...
View ArticleHow To Come To Terms With The Limitations Of Your Illness
By Anne Marie Morgan in The Mighty. To say that there is a stigma in our society surrounding the word “can’t” might be the understatement of this century. Popular slogans tell us to “Just Do It,”...
View ArticleWhy ‘Healthy Coping’ Is Better for Our Health Than Positive Thinking
By Mary Mattio in The Mighty. “Keep thinking positively!” “Keep your chin up!” “Stay strong!” These are some of the most common cliché responses we hear from people in society on a regular basis....
View ArticleLosing A Beloved Career To A Chronic Illness: Caroline’s ME/CFS Story
By Caroline Christian in Health Rising. After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first...
View ArticleHow To Treat A Person With Chronic Illness – A Step-By-Step Guide
By Jaime from her ‘I Told You I Was Sick’ Blog. If you have a friend with chronic illness but don’t know how to talk to them, it’s OK. You’re not alone. When you’re healthy, trying to get inside...
View ArticleThe Struggle You Don’t Realize When You See Me Out And About
By Lindsay Karp in The Mighty. There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think...
View ArticleTo Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling
By Tiffany Early in The Conversation. My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random...
View ArticleHow I Remain An Incurable Optimist, Even With Chronic Illness
By Lisa Alioto in The Mighty. I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists...
View ArticleGuest Post: Being A Mummy With ME
From Scope. I’m Alison, I’m in my (very late!) 30s and I have a debilitating chronic illness called M.E (myalgic encephalomyelitis). I am a mummy to an almost 9 year old beautiful little girl and I...
View ArticleIn My Chronic Illness, I Found A Deeper Meaning
By Elliot Kukla in The New York Times. I became disabled overnight in a car accident. The car accident was a dream, but the disability was real. I dreamed I was driving through the ravaged streets...
View ArticleAre You Chronically Ill ? Don’t Make Things Worse !
By Toni Bernhard J.D. in Psychology Today. I became chronically ill in 2001. For several years afterward, I was a master at making a difficult situation worse for myself. The list is long, but I’ll...
View ArticleA letter To My Chronic illness
From the Blog by justlittleme. Dear Chronic illness, I am going to start off by saying I wish you would just give me a break. You certainly gave me more than I bargained for at 13. I was expecting...
View ArticlePrescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain
By Sarah Yahm in Slate. A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my...
View ArticleThe Choices You Have As A Chronic Illness Warrior
By Lisa Alioto in The Mighty. Life is full of constant choices. Some are small and meaningless and others are life-changing. The key and beauty of it all is that there is an abundance of daily...
View Article19 Lessons My Invisible Illnesses Have Taught Me
By Caz in The Mighty. Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment,...
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